Monday, May 29, 2006

more news from jaan to alice to everyone else...

hello again. i was at the hospital with jaan today when some of the doctors came in and said "we have no idea why you still feel sick so we might give you some prednisolone and see what that does". they think jaan might have a fungal infectional in his lungs - which is weird if they would give him pred. for it cos the internet told me that if he had a fungal infection he shouldnt take that sort of drug... - but hey. we'll see. i think the intern's exact words were "we are clutching at straws now" so that instills enormous amounts of hope in their future diagnosis. i think it will be good when we get the next lung function results back because then we can see if its cf sick (he says he still feels cf sick) or sillyness with his throat or something else...

okay, so if jaan does go on this inflamitry steriod prednisolone, it could have side effects. the most common is mood swings and "changes in behaviour" so that should be fun... i think we should all avoid him for a bit. well, at least do what he says for a while... (dont tell jaan i said that). there are also other icky side effects but ill elt everyone know them when/if they happen. and if he wants everyone to know.

but mr. jaan is happy. ive had comments from others saying its good to see him so chirpy and "himself". i like it when jaan smiles a lot, and he is at the moment. again, its the "acceptence of the feeling sick" he says that is making him happy. its hard to explain... especially when its not me who feels this way. ill let him do that on his next entry of his very own.

anyway. thats the next update. i hope everyone is well and happy.

love alice

2 comments:

Janka said...

Holy shit!
there I go, not keeping up with jaanies blog and all of a sudden alley's writing..:)
Anyways, hi Alley, had no clue Jaan was so ill...please give him a big hugg from me and say sorry, sorry, sorry that I haven't been reading his blog (or updating mine, for that matter) in such a long time and distance is absolutely NO excuse!
Promise I'll improve! And thank you so much for posting on jaanies blog..and fair play, you seem to know your share of all the CF shit! :)

Anonymous said...

hey janka! yeah, im trying to keep everyone up to date with whats going on because: one) i need to know myself, and two) its good to keep everyone in the loop with his health (as this is a health blog!) i just hope my entries arent boring! i hope you're well and having fun surfing! alley